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GRCSG Home2019-03-13T20:05:56+00:00

Featured & Upcoming Events

We realize that everyone has a busy schedule, so we hold monthly social outings on different days of the weeks in different parts of Rochester. See the schedule below to see what is coming up! We do have newcomer meetings for those new to a gluten free diet. See the schedule below for those meetings as well.

Greater Rochester Celiac Support Group’s 2018 People’s Choice Cupcake of the Year… goes to Gourmet Goodies, Victor NY. Visit their website.

Upcoming Events

April Social: Sisu Eats

April 7 @ 12:30 pm - 2:30 pm

Our Instagram

  • Promoting Celiac Health in Rochester, NY

    1,000 members strong

    The Greater Rochester Celiac Support Group provides guidance to those newly diagnosed with Celiac Disease or Gluten Sensitivity and works to increase awareness about the disease. The volunteer-run organization serves over 1000 members and is a 501(c)(3) non-profit organization.
    If you need support in person, we hold monthly meetings for newcomers, regular members and youth group members. If you are looking for resources, we maintain a restaurant list based on feedback from our members. We have a large Google group email list that provides a great deal of support to those looking for advice or wanting to share their gluten free experiences.

    Subscribe to our Google Group

    Click here to join

    Then click on “Apply for membership”

    New Additions

    to our ever-growing list of Gluten-Free friendly establishments

    FLX Fry Bird

    18 LINDEN STREET, GENEVA, NY (315) 789-1613 Website: https://flx-frybird.com/ Gluten free items indicated on their menu.

    Sisu Eats

    An entirely gluten free restaurant 2570 Ridgeway Ave.Rochester NY, 14626Tel: (585) 270-5875https://www.sisueats.com/ ​ ​ Join the fast-food paradigm shift.

    Monroe’s Restaurant and Bar

    They have a very extensive Gluten Free menu, inquire with host. 3001 Monroe Avenue Rochester, NY 14618 585-348-9103​ Click here to view the gluten free menu! https://www.monroes3001.com/

    Chick-fil-a

    Gluten free bun available. Grilled chicken for sandwich, nuggets or salad gluten free. Gluten free waffle fries. As with all things - let them know about your allergen

    Meals by DeLeo

    Rochester weekly Meal Delivery Service, gluten free meal options available https://mealsbydeleo.com/

    New to Celiac Disease and Rochester? We have a group for that!

    Newcomer Meetings

    Have a child on a gluten free diet? We have a group for that too!

    Youth Group Information

    Looking for ways to give or help out. We would love it!

    Learn More

    What is Celiac Disease

    Celiac disease (CD) is an autoimmune disease where gluten, a protein found in wheat, rye, and barley, causes the body’s immune system to attack the lining of the small intestine.

    What are the symptoms?

    Celiac Disease presents itself in many ways. Symptoms include but are not limited to:

    • Diarrhea or constipation
    • Weight loss
    • Abdominal pain
    • Vomiting
    • Bloating and distension
    • Anorexia
    • Anemia
    • Skin rash (dermatitis herpetiformis)
    • Short stature
    • Delayed puberty
    • Infertility
    • Miscarriages
    • Osteoporosis
    • Vitamin deficiencies
    • Fatigue
    • Depression and anxiety

    How common is it?

    1 in 133 Americans according to a recent study by the Center for Celiac Research at the University of Maryland. That amounts to nearly 3-million people in the United States, most of whom are undiagnosed.

    How is it diagnosed?

    Good blood tests are now available including IgA antihuman tissue transglutaminase (TTG) and IgA endomysial antibody immunofluorescence (EMA). The NIH Consensus Conference on Celiac Disease recommended serologic testing as the first step in diagnosis with biopsy of the small intestine indicated if the blood tests are positive. Testing must be done while the patient is on a gluten-containing diet.

    97% of people with celiac disease have the genetic markers HLA DQ2 and/or DQ8 compared to 40% of the general population who have these markers so an individual without these markers is unlikely to have celiac disease.

    How is it treated?

    Life-long adherance to a gluten-free diet

    “After I was diagnosed with celiac disease, I said yes to food, with great enthusiasm. . . . I vowed to taste everything I could eat, rather than focusing on what I could not.”
    Shauna James Ahern • The Gluten Free Girl
    “Non-celiac gluten sensitivity is a separate diagnosis from celiac disease that occurs in up to 6% of Americans”
    Alessio Fasano, MD • Founder and Director of the Center for Celiac Research at Massachusetts General Hospital
    “Today, 1 in 133 people have celiac disease, a genetically linked, autoimmune response to gluten. That’s more than 2 million people in the U.S., and 1 percent of the global population. However, most do not know it.”