Join Us

Social Outings • Family Events

Our group is here to support you.

Check out our Events page for social, family and educational events.

New to GF

Overwhelmed. We can help!

We know it can be overwhelming

We provide virtual meetings for anyone new to gluten free living. Contact us for more info.


United Way • Volunteer

Your support helps our support.

Donate through United Way, or contact us if you are interested in volunteering.

Greater Rochester Celiac Support Group

We are a not-for-profit 501(c)3 organization committed to supporting people living on a gluten free diet. We have no membership dues and welcome members with Celiac Disease, Gluten Sensitivities and anyone caring for someone on a gluten free diet. We are a completely volunteer organization that was started in 1991 by a couple of dedicated women with Celiac Disease.

A bit of history:
When the group was started, Wegmans didn’t have a gluten free sections, restaurants didn’t have gluten free menus and most people made their own gluten free food at home. Can you imagine?

Eventually the group decided to join CSA (Celiac Sprue Association) so that Rochester Celiacs could benefit from being a part of a National Organization. In 2008, the group decided to leave CSA and join GIG (Gluten Intolerance Group). Our group gained so much from both parent organizations but in 2011, the Rochester Celiac Support Group decided to become their own entity and was renamed the Greater Rochester Celiac Support Group.

Meet the Board:
Per the Greater Rochester Celiac Support Groups’s by-laws, the following are positions on the Advisory Board.

President, Vice President, Treasurer and Secretary
All other Board Members

2024 Advisory Board
President: Lydia Powers
Vice President: OPEN POSITION
Secretary: Emily Milazzo
Treasurer: Ralph Powers
Board Member: Stephanie Montero
Board Member: Becki Bigham
Board Member: Emily McMichael

Interested in any of the open positions, or want to help in a different way visit our Get Involved page