Welcome to the Greater Rochester Celiac Support Group
The Greater Rochester Celiac Support Group is a volunteer-run 501(c)(3) nonprofit organization dedicated to supporting individuals and families living with celiac disease, non-celiac gluten sensitivity, dermatitis herpetiformis, and other gluten-related disorders.
Whether you’re newly diagnosed, have been living gluten free for years, or are supporting a family member or friend, you’ll find a welcoming community here. Our mission is to educate, connect, and empower people to live healthy, confident gluten-free lives.
Through education, advocacy, community events, and trusted local resources, we work to increase awareness of gluten-related disorders while helping our members navigate the challenges of everyday life.
What We Offer
Monthly Support Group Meetings
Join us each month for welcoming support group meetings designed for those who are newly diagnosed with celiac disease, as well as anyone looking to connect with others, share experiences, ask questions, and build community.
Community Events
Enjoy social gatherings throughout the year, including happy hours, family picnics, playground meetups, Trunk-or-Treat, Breakfast with Santa, educational presentations, and more.
Gluten-Free Resources
Explore a growing collection of trusted information, local recommendations, and practical tools to help you navigate a gluten-free lifestyle.
Local Restaurant Guide
Discover our community-driven list of gluten-free friendly restaurants, bakeries, and businesses throughout the Greater Rochester area.
Advocacy & Awareness
We partner with healthcare professionals, local businesses, and national organizations to raise awareness, educate our community, and improve the lives of those living gluten free.
Whether you’re looking for answers, encouragement, practical resources, or simply others who understand the gluten-free journey, we’re glad you’re here.
We invite you to explore our upcoming events and become part of our growing gluten-free community!
Promoting Celiac Health in Rochester, NY
1,000 members strong
The Greater Rochester Celiac Support Group provides guidance to those newly diagnosed with Celiac Disease or Gluten Sensitivity and works to increase awareness about the disease. The volunteer-run organization serves over 1000 members and is a 501(c)(3) non-profit organization.
If you need support in person, we hold monthly meetings for newcomers and monthly social events. If you are looking for resources, we maintain a restaurant list based on feedback from our members. We have a large Google group email list that provides a great deal of support to those looking for advice or wanting to share their gluten free experiences.
Download our flyer: GRCSG_Flyer
Handy if you want to share our group information with anyone!
Subscribe to our Google Group
We maintain an email group where members can ask questions of other members, share new product or restaurant information or celiac news, and the board emails about events and other pertinent information. If you are interested in joining the email group, please fill out the contact form below and we can add you to the list! By signing up for the email list, you agree to the following… Google Group Information
New Additions
to our ever-growing list of Gluten-Free friendly establishments
Ardor Park Artisanal Pizza
Ardor Park Artisanal Pizza OPEN LATE Gluten Free Apps, Pizzas and Desserts 117 Park Avenue, Rochester NY 14607 Website: https://ardorpizza.com/
Moo’d Burger Bar
Moo'd Burger Bar Gluten free appetizer, main and dessert options! 1344 University Ave., Suite 110 Rochester, NY 14607 Website: https://www.moodburgerbar.com/
Simple Love Bakery
Simply Love Bakery, located on the Westside in Brockport. It is a food sensitivity bakery that is specialized in baked goods that are top 9 allergens free from
Jojo’s Bistro & Wine Bar
Jojo's Bistro & Wine Bar Gluten Free indicated on menu. Separate GF Fryer. Pittsford: 60 North Main Street Pittsford Village, NY 14534 Webster: 42 East Main Street Webster,
What is Celiac Disease
Celiac disease (CD) is an autoimmune disease where gluten, a protein found in wheat, rye, and barley, causes the body’s immune system to attack the lining of the small intestine.
What are the symptoms?
Celiac Disease presents itself in many ways. Symptoms include but are not limited to:
- Diarrhea or constipation
- Weight loss
- Abdominal pain
- Vomiting
- Bloating and distension
- Anorexia
- Anemia
- Skin rash (dermatitis herpetiformis)
- Short stature
- Delayed puberty
- Infertility
- Miscarriages
- Osteoporosis
- Vitamin deficiencies
- Fatigue
- Depression and anxiety
How common is it?
1 in 133 Americans according to a recent study by the Center for Celiac Research at the University of Maryland. That amounts to nearly 3-million people in the United States, most of whom are undiagnosed.
How is it diagnosed?
Good blood tests are now available including IgA antihuman tissue transglutaminase (TTG) and IgA endomysial antibody immunofluorescence (EMA). The NIH Consensus Conference on Celiac Disease recommended serologic testing as the first step in diagnosis with biopsy of the small intestine indicated if the blood tests are positive. Testing must be done while the patient is on a gluten-containing diet.
97% of people with celiac disease have the genetic markers HLA DQ2 and/or DQ8 compared to 40% of the general population who have these markers so an individual without these markers is unlikely to have celiac disease.
How is it treated?
Life-long adherance to a gluten-free diet