We are a not-for-profit 501(c)3 organization committed to supporting people living on a gluten free diet. We have no membership dues and welcome members with Celiac Disease, Gluten Sensitivities and anyone caring for someone on a gluten free diet. We are a completely volunteer organization that was started in 1991 by a couple of dedicated women with Celiac Disease.
A bit of history:
When the group was started, Wegmans didn’t have a gluten free sections, restaurants didn’t have gluten free menus and most people made their own gluten free food at home. Can you imagine?
Eventually the group decided to join CSA (Celiac Sprue Association) so that Rochester Celiacs could benefit from being a part of a National Organization. In 2008, the group decided to leave CSA and join GIG (Gluten Intolerance Group). Our group gained so much from both parent organizations but in 2011, the Rochester Celiac Support Group decided to become their own entity and was renamed the Greater Rochester Celiac Support Group.
Meet the Board:
Per the Greater Rochester Celiac Support Groups’s by-laws, the following are positions on the Advisory Board.
President, Vice President, Treasurer and Secretary
Past President, At Large Membership, Family Event Coordinator, GF Educational Coordinator, Restaurant Liaison, Community Outreach Director,
Communications Director, Social Media Manager, Mentorship
October 2022 – September 2023 Advisory Board
Past President: Julie Brown
President: Lydia Powers
Vice President: Brandie Tekin
Secretary: Emily Gray
Treasurer: Ralph Powers
Family Event and Social/Networking Coordinator, Co-Chair: Dawn Molitor
Family Event and Social/Networking Coordinator, Co-Chair: Jillian Webster
GF Educational Coordinator: Stephanie Montero
Member At Large: Mike Tetlow
Member At Large: Becki Bigham
Member At Large: Emily Milazzo
OPEN POSITIONS for 2022-2023
Community Outreach Director
manages relationships with external groups, handles donations and sponsorships, etc.
Manage info@ email and distributes group communications
Coordinates newcomer meetings and connections with similar situations for members.
Interested in any of the open positions, or want to help in a different way, contact us for more information!