We are a not-for-profit 501(c)3 organization committed to supporting people living on a gluten free diet. We have no membership dues and welcome members with Celiac Disease, Gluten Sensitivities and anyone caring for someone on a gluten free diet. We are a completely volunteer organization that was started in 1991 by a couple of dedicated women with Celiac Disease.
A bit of history:
When the group was started, Wegmans didn’t have a gluten free sections, restaurants didn’t have gluten free menus and most people made their own gluten free food at home. Can you imagine?
Eventually the group decided to join CSA (Celiac Sprue Association) so that Rochester Celiacs could benefit from being a part of a National Organization. In 2008, the group decided to leave CSA and join GIG (Gluten Intolerance Group). Our group gained so much from both parent organizations but in 2011, the Rochester Celiac Support Group decided to become their own entity and was renamed the Greater Rochester Celiac Support Group.
Meet the Board:
Per the Greater Rochester Celiac Support Groups’s by-laws, the following are positions on the Advisory Board.
President, Vice President and Treasurer
President, Vice President, Treasurer and Secretary
Past President, Membership & Newcomer Orientation, At Large Membership,
Communications, Resources, Youth Group Co-Chairs, Walk Co-Chairs
July 2018 – July 2019 Advisory Board
Past President: Julie Brown
President: Lydia Powers
Vice President: Jim Durkin
Treasurer: Ania Majewska
Secretary: Alix Quinn
Membership & Newcomer Orientation: Mike Tetlow
Webmaster: Erin Noel
Youth Group: Heather Walsh
Member At Large: Katie Shoup
Member At Large: Susan Guffey
Communications: OPEN POSITION
Resources: OPEN POSITION
Interested in any of the open positions, or want to help in a different way, contact us for more information!